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Emphysema Research Registry and Biosample Repository
Sponsor: University of Pittsburgh
Summary
The Comprehensive Lung Center (CLC) at the University of Pittsburgh Medical Center (UPMC Health System) provides patients with any type of breathing or lung disorder a full range of diagnostic and therapeutic services. The Emphysema/COPD Research Center (ECRC) is a specialty clinic, within this center, that attempts to advance the understanding of emphysema and to evaluate new therapies for patients with emphysema. The Emphysema Research Registry will enable pulmonary research physicians to: 1) gather information and create a research registry of people who have been diagnosed with emphysema; 2) utilize this research registry with the purpose of conducting research that attempts to advance the understanding of emphysema and to evaluate new therapies; and, 3) use the research registry to identify potential candidates for future research programs. These aims will be achieved by the collection of DNA (genetic material)for analysis and storage in addition to pulmonary function tests and other medical information.
Official title: Emphysema Research Registry; Screening Study and Genetic Testing
Key Details
Gender
All
Age Range
21 Years - Any
Study Type
OBSERVATIONAL
Enrollment
3000
Start Date
2000-08
Completion Date
2030-07
Last Updated
2025-09-25
Healthy Volunteers
Yes
Locations (1)
University of Pittsburgh Emphysema/COPD Research Center
Pittsburgh, Pennsylvania, United States