Clinical Research Directory
Browse clinical research sites, groups, and studies.
Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life
Sponsor: Memorial Sloan Kettering Cancer Center
Summary
The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
473
Start Date
2008-03-11
Completion Date
2027-03
Last Updated
2026-02-02
Healthy Volunteers
No
Conditions
Interventions
Questionnaires
The survey will be administered by mail or telephone interview, based upon the participant preference. The survey has been adapted from the 2008 questionnaire being administered through the CCSS (11); it has been supplemented with questions addressing areas of interest specific to the retinoblastoma survivor population (eg, validated instruments that assess visual impairment).
Locations (1)
Memorial Sloan Kettering Cancer Center
New York, New York, United States