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International Pediatric Adrenocortical Tumor Registry
Sponsor: St. Jude Children's Research Hospital
Summary
This study aims to collect demographic and medical information including detailed family history of cancer of children and adolescents with adrenocortical tumors in order to learn more about the clinical and epidemiological aspects, treatment modalities, and outcome of patients with this rare disease, worldwide. In addition, investigators at St. Jude Children's Research Hospital (SJCRH) plan to perform molecular studies of tumor cells aimed to clarify the role of the TP53 gene and other genetic pathways in these tumors. They aim to obtain relevant biological material from participants with adrenocortical tumor (ACT), their biological parents, and relatives for determination of the TP53 germline status, molecular studies of the TP53 gene, and other molecular pathways.
Key Details
Gender
All
Age Range
Any - 21 Years
Study Type
OBSERVATIONAL
Enrollment
9999
Start Date
2001-10-01
Completion Date
2040-12
Last Updated
2025-12-18
Healthy Volunteers
No
Conditions
Locations (5)
Stanford University
Stanford, California, United States
All Children's Hospital/St. Petersburg Hospital
St. Petersburg, Florida, United States
The Children's Medical Center
Dayton, Ohio, United States
St. Jude Children's Research Hospital
Memphis, Tennessee, United States
Cook Children's Medical Center
Fort Worth, Texas, United States