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Adolescent and Young Adult Cancer Survivors: Identity Development
Sponsor: Memorial Sloan Kettering Cancer Center
Summary
The purpose of this study is to better understand how the illness has affected the identity and what needs the survivor may have. We hope that this information will help us provide better care to future adolescent and young adult cancer survivors.
Key Details
Gender
All
Age Range
15 Years - 25 Years
Study Type
OBSERVATIONAL
Enrollment
300
Start Date
2009-01
Completion Date
2027-01
Last Updated
2026-03-03
Healthy Volunteers
No
Conditions
Interventions
interview
The doctor and/or one of her trained research study staff will ask the patient about their experience as an adolescent/young adult cancer survivor, their health and quality of life. It should take (approximately 1-1 ½ hours)to complete. Interviews will be audiotaped and transcribed by a professional transcription service.
Focus groups
The patient will participate with 6-8 other adolescent/young adult cancer survivors. The doctor and/or her trained research study staff will ask about their experience as an adolescent/young adult cancer survivor, their health and quality of life. It should take about one-and-a-half hour to complete. Focus groups will be audio taped and transcribed by a professional transcription service.
Questionnaire
The patient will be asked to participate in three 60-90 minute telephone interviews conducted by the doctor and/or her trained research study staff scheduled at the patient's convenience, the second interview approximately 6-8 months after the first and the last interview approximately 12-16 months after the first. The questionnaire will ask about their experience as an adolescent/young adult cancer survivor, their health and quality of life.
Locations (1)
Memorial Sloan Kettering Cancer Center
New York, New York, United States