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SwissNET - a Registry for Neuroendocrine Tumours in Switzerland
Sponsor: Insel Gruppe AG, University Hospital Bern
Summary
Gastroentero-pancreatic neuroendocrine tumours (GEP-NETs) are regarded as a fairly rare disease. They are derived from the neuroendocrine system of the gastrointestinal tract and the pancreas and share common clinical features. So far, there is still uncertainty about the cell biology and mechanistic regulation of these tumours. Therefore targeted treatment is limited and management challenging. Treatment options include surgery, medical and ablative therapy, and more recently peptide-receptor radionuclide therapy. In order to better understand the characteristics of GEP-NETs and to evaluate treatment strategies, the SwissNET registry aims at the collection of data from patients presenting with a GEP-NET in Switzerland. Data will be entered prospectively and anonymized in a specifically designed database after the patient has given informed consent. All hospitals and general practitioners are invited to report on patients with a GEP-NET diagnosis and to participate to the registry. Data will be evaluated within regular time frames, focussing on types of GEP-NETs, treatment modalities and patient outcomes (e.g. mortality, hospitalisation rate), thereby contributing to the better understanding of these tumours.
Official title: SwissNET - a Prospective Registry of Patients With Neuroendocrine Tumours in Switzerland
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
1245
Start Date
2008-01
Completion Date
2028-01
Last Updated
2020-01-23
Healthy Volunteers
No
Conditions
Locations (55)
Kantonsspital Aarau
Aarau, Switzerland
Spitalnetz Bern Aarberg
Aarberg, Switzerland
Bezirksspital Affoltern
Affoltern am Albis, Switzerland
Kantonsspital Uri, Altdorf
Altdorf, Switzerland
St. Claraspital
Basel, Switzerland
Universitätsspital Basel
Basel, Switzerland
Istituto oncologico della Svizzera italiana
Bellinzona, Switzerland
Div. of Endocrinology, Diabetes and Clinical Nutrition, Bern University Hospital
Bern, Switzerland
Spital Tiefenau, Spitalnetz Bern
Bern, Switzerland
Zieglerspital Bern
Bern, Switzerland
Spitalzentrum Biel - Bienne
Biel, Switzerland
Kantonsspital Bruderholz
Bruderholz, Switzerland
Regionsspital Emmental
Burgdorf, Switzerland
Kantonsspital Chur
Chur, Switzerland
Private practise Dr. Mannhart
Churwalden, Switzerland
Hôpital du Jura
Delémont, Switzerland
Spital Dornach
Dornach, Switzerland
Regionalspital Einsiedeln
Einsiedeln, Switzerland
Hôpitaux Universitaires de Genève
Geneva, Switzerland
Spital Grabs
Grabs, Switzerland
See-Spital Horgen
Horgen, Switzerland
Spital Zimmerberg
Horgen, Switzerland
Fmi Spital Interlaken
Interlaken, Switzerland
Spital Lachen
Lachen, Switzerland
Spital Region Oberaargau
Langenthal, Switzerland
Kantonsspital Laufen
Laufen, Switzerland
Centre hospitalier universitaire vaudois, CHUV
Lausanne, Switzerland
Kantonsspital Liestal
Liestal, Switzerland
Hirslandenklinik St. Anna
Lucerne, Switzerland
Kantonsspital Luzern
Lucerne, Switzerland
Kantonsspital Sursee, Luzern
Lucerne, Switzerland
Kreisspital Männedorf
Männedorf, Switzerland
Kantonsspital Münsterlingen
Münsterlingen, Switzerland
Kantonsspital Olten
Olten, Switzerland
Gesundheitszentrum Fricktal
Rheinfelden, Switzerland
Kantonsspital St. Gallen
Sankt Gallen, Switzerland
Kantonsspital Obwalden
Sarnen, Switzerland
Spital Limmattal
Schlieren, Switzerland
Spital Schwyz
Schwyz, Switzerland
Privatpraxis Dr. H.J. Poths
Seuzach Dorf, Switzerland
Centre hospitalier du centre du Valais
Sion, Switzerland
Bürgerspital Solothurn
Solothurn, Switzerland
Kantonsspital Nidwalden
Stans, Switzerland
Thun Spital STS AG
Thun, Switzerland
Spital Uster
Uster, Switzerland
Regionalspital Visp
Visp, Switzerland
Kantonsspital Winterthur
Winterthur, Switzerland
Kantonsspital Wolhusen
Wolhusen, Switzerland
Spital Zollikerberg
Zollikerberg, Switzerland
Zuger Kantonsspital AG
Zug, Switzerland
Pathologie Medica Zürich
Zurich, Switzerland
Stadtspital Triemli
Zurich, Switzerland
Stadtspital Waid
Zurich, Switzerland
Universitätsspital Zürich
Zurich, Switzerland
STS AG Spital Zweisimmen
Zweisimmen, Switzerland