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The Natural History Study of Mitochondrial NeuroGastroIntestinal Encephalopathy (MNGIE)
Sponsor: Columbia University
Summary
This is a multi-center natural history study of Mitochondrial NeurogastroIntestinal Encephalopathy (MNGIE). Patients will be followed over time to assess clinical symptoms. The investigators hope to learn more about the disease of MNGIE as well as develop useful measures of disease status for use in future clinical trials. Additional clinical centers will be listed as they become available.
Official title: The Rare Disease Clinical Research Network Natural History Study of MNGIE
Key Details
Gender
All
Age Range
5 Years - Any
Study Type
OBSERVATIONAL
Enrollment
20
Start Date
2013-02
Completion Date
2026-12
Last Updated
2025-04-17
Healthy Volunteers
No
Locations (1)
Columbia University
New York, New York, United States