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Institutional Registry of Haemorrhagic Hereditary Telangiectasia
Sponsor: Hospital Italiano de Buenos Aires
Summary
The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival. This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
590
Start Date
2010-01-01
Completion Date
2035-12
Last Updated
2025-05-22
Healthy Volunteers
No
Conditions
Locations (1)
Hospital Italiano de Buenos Aires
Buenos Aires, Buenos Aires, Argentina