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RECRUITING

NCT01885767

Neurofibromatosis (NF) Registry Portal

Sponsor: The Children's Tumor Foundation

View on ClinicalTrials.gov

Summary

The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.

Official title: Neurofibromatosis (NF) Registry Portal Funded by Children's Tumor Foundation

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

20000

Start Date

2012-06

Completion Date

2050-06

Last Updated

2023-08-30

Healthy Volunteers

Conditions

Neurofibromatosis 1 Neurofibromatosis 2 Schwannomatosis

Locations (1)

Children's Tumor Fundation

New York, New York, United States