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Analysis of Patients Treated for Chronic Granulomatous Disease Since January 1, 1995
Sponsor: National Institute of Allergy and Infectious Diseases (NIAID)
Summary
This study is a longitudinal and cross-sectional evaluation of patients with Chronic Granulomatous Disease (CGD) who received or are receiving hematopoietic cell transplantation (HCT) for their disease under a variety of protocols used by participating institutions compared to a control non-HCT group receiving standard care. Investigators at multiple centers caring for patients with CGD in North America and 3 centers in Europe will participate. Patients with CGD will have been treated according to institutional practice and protocols. Investigators will enroll these patients as subjects in this protocol. This study will investigate which patients benefit most from HCT, and what types of transplants are optimal for patients with CGD, in the context of overall outcomes in CGD patients with and without transplant.
Key Details
Gender
All
Age Range
3 Years - Any
Study Type
OBSERVATIONAL
Enrollment
137
Start Date
2014-06-11
Completion Date
2022-06-02
Last Updated
2026-04-14
Healthy Volunteers
No
Conditions
Locations (1)
National Institutes of Health Clinical Center
Bethesda, Maryland, United States