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Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Sponsor: New York Medical College
Summary
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Key Details
Gender
All
Age Range
1 Day - 21 Years
Study Type
OBSERVATIONAL
Enrollment
2500
Start Date
2014-10
Completion Date
2031-12
Last Updated
2025-03-13
Healthy Volunteers
No
Locations (14)
Stanford University Medical Center
Palo Alto, California, United States
University California San Francisco
San Francisco, California, United States
Children's Hospital Colorado
Aurora, Colorado, United States
Johns Hopkins All Children's Heart Institute
St. Petersburg, Florida, United States
Johns Hopkins Children's Center
Baltimore, Maryland, United States
Boston Children's Hospital
Boston, Massachusetts, United States
Columbia University Medical Center
New York, New York, United States
Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center
New York, New York, United States
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
Vanderbilt University Medical Center
Nashville, Tennessee, United States
Texas Children's
Houston, Texas, United States
Seattle Children's Hospital
Seattle, Washington, United States
University of Alberta Edmonton
Edmonton, Alberta, Canada