Clinical Research Directory

Swiss National Registry of Grown up Congenital Heart Disease Patients

Sponsor: University Hospital, Basel, Switzerland

Summary

Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or "grown-ups" with congenital heart disease (ACHD or GUCH patients) that require special health care organization and training programmes. Long term complications of these GUCH patients and optimum treatment strategies are still poorly known. The aim of this registry is to collect quantitative and qualitative data regarding GUCH patients treated in specialised centres in Switzerland.

Official title: Swiss National Registry of Grown up Congenital Heart Disease (GUCH) Patients

Key Details

Conditions

Locations (6)