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RECRUITING

NCT02398786

Myotonic Dystrophy Family Registry

Sponsor: Myotonic Dystrophy Foundation

View on ClinicalTrials.gov

Summary

The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

3500

Start Date

2013-02

Completion Date

2030-02

Last Updated

2024-11-21

Healthy Volunteers

Conditions

Myotonic Dystrophy Congenital Myotonic Dystrophy Myotonic Dystrophy 1 Myotonic Dystrophy 2 Dystrophia Myotonica Dystrophia Myotonica 1 Dystrophia Myotonica 2 Myotonia Dystrophica Myotonic Dystrophy, Congenital Myotonic Myopathy, Proximal PROMM (Proximal Myotonic Myopathy)Proximal Myotonic Myopathy Steinert Disease Steinert Myotonic Dystrophy Steinert's Disease Myotonia Atrophica

Interventions

OTHER

Patient-entered data

This registry provides patient-entered data for future clinical trial and study use.

Locations (1)

Myotonic Dystrophy Foundation

Oakland, California, United States