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The EUROSCA Natural History Study
Sponsor: Ataxia Study Group
Summary
The key goals of EUROSCA-NHS is to determine and compare the rate of disease progression in SCA1, SCA2, SCA3 and SCA6 including determination of the order and occurrence of non-ataxia symptoms, assessment of activities of daily living (ADL) and quality of life (QoL), and identification of predictors of disease progression and survival.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
400
Start Date
2005-07
Completion Date
2050-07
Last Updated
2017-06-29
Healthy Volunteers
No
Conditions
Locations (16)
Department of Neurology, Medical University, Innsbruck
Innsbruck, Austria
Université Libre de Bruxelles (ULB), Neurology Service - ULB Hôpital Erasme, ULB Laboratory of Experimental Neurology
Brussels, Belgium
Hôpital de la Pitié-Salpêtrière, Département de Génétique
Paris, France
Department of Neurology, St. Josef Hospital, University Hospital of Bochum
Bochum, Germany
Department of Neurology, University of Bonn
Bonn, Germany
Department of Neurology, University Clinic Essen, University of Duisburg-Essen
Essen, Germany
Department of Neurology, University of Frankfurt
Frankfurt, Germany
Department of Neurodegeneration and Hertie-Institute for Clinical Brain Research, University of Tübingen
Tübingen, Germany
Department of Medical Genetics, University of Pecs
Pécs, Hungary
Department of Neurology, Zala County Hospital
Zalaegerszeg, Hungary
Fondazione-IRCCS Istituto Neurologico Carlo Besta
Milan, Italy
Department of Neuroscience, Federico II University Naples
Naples, Italy
Radboud University Medical Center, Department of Neurology, Donders Institute for Brain, Cognition, and Behaviour
Nijmegen, Netherlands
Institute of Psychiatry and Neurology
Warsaw, Poland
University Hospital Marqués de Valdecilla (IDIVAL), University of Cantabria
Santander, Spain
Institute of Neurology
London, United Kingdom