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Hairy Cell Leukemia Patient Data Registry
Sponsor: Ohio State University Comprehensive Cancer Center
Summary
The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.
Official title: Clinical Research in Hairy Cell Leukemia: Surveillance and Documentation of Clinical Outcomes in a Rare Form of Adult Leukemia
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
5000
Start Date
2013-01-02
Completion Date
2030-12-31
Last Updated
2025-04-16
Healthy Volunteers
No
Conditions
Locations (6)
University of Miami/Soffer Clinical Research Center
Miami, Florida, United States
Mayo Clinic
Rochester, Minnesota, United States
University of Rochester /Wilmot Cancer Institute
Rochester, New York, United States
Ohio State University Comprehensive Cancer Center
Columbus, Ohio, United States
Peter MacCallum Cancer Center
Melbourne, Victoria, Australia
Cancer Care Manitoba
Winnipeg, Manitoba, Canada