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Allied Cleft & Craniofacial Quality-Improvement and Research Network (ACCQUIREnet)
Sponsor: Duke University
Summary
The Allied Cleft \& Craniofacial Quality-Improvement and Research Network (ACCQUIREnet) is a group of multidisciplinary cleft teams that have implemented a system for prospective collection of outcomes data, based on the ICHOM Standard Set for the Comprehensive Appraisal of Cleft Care, CLEFT-Q, and other outcomes instruments. Participating cleft teams may analyze clinical and psychosocial outcomes related to care of the child with cleft lip and/or palate (CL/P), compare its performance with those of other cleft centers, and identify opportunities for quality improvement.
Official title: Allied Cleft & Craniofacial Quality-Improvement and Research Network (ACCQUIREnet): Prospective Data-collection System and Learning Health-care Network for the Comprehensive Appraisal of Cleft and Craniofacial Care
Key Details
Gender
All
Age Range
1 Day - 22 Years
Study Type
OBSERVATIONAL
Enrollment
1000
Start Date
2016-10
Completion Date
2031-12
Last Updated
2026-01-07
Healthy Volunteers
No
Interventions
cleft lip repair
cleft palate repair
oronasal fistula repair
pharyngoplasty
gingivoperiosteoplasty
LeFort-1 maxillary repositioning
rhinoplasty
myringotomy and tympanostomy tube placement
speech therapy
orthodontia
presurgical orthopedics
sound amplification for hearing
Locations (11)
University of Florida - Shands Hospital
Gainesville, Florida, United States
Joe DiMaggio Children's Hospital
Hollywood, Florida, United States
Orlando Health - Arnold Palmer Hospital for Children
Orlando, Florida, United States
Johns Hopkins - All Children's Hospital (JHACH)
St. Petersburg, Florida, United States
Maine Medical Center
Portland, Maine, United States
Harvard University - Boston Children's Hospital (BCH)
Boston, Massachusetts, United States
Washington University - St. Louis Children's Hospital (WUSTL)
St Louis, Missouri, United States
Duke University - Duke Children's Hospital & Health Center
Durham, North Carolina, United States
Wake Forest University - Brenner Children's Hospital
Winston-Salem, North Carolina, United States
University of Texas at Houston - Children's Memorial Hermann Hospital
Houston, Texas, United States
Dalhousie University - IWK Health Centre
Halifax, Nova Scotia, Canada