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European Management Platform for Childhood Interstitial Lung Diseases - chILD-EU Register and Biobank
Sponsor: Matthias Griese
Summary
Generation of a common European database and biobank Continous assessment and implementation of guidelines and treatment protocols Establishment of a large observational cohort of chILD patients Determination the value of outcomes used in child Assess treatment variations used, deliver data from defined protocols and linked outcomes
Official title: Orphans Unite: chILD Better Together - European Management Platform for Childhood Interstitial Lung Diseases / chILD-EU - International Register and Biobank for Children´s Interstital Lung Disease
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
1000
Start Date
2013-12
Completion Date
2029-12
Last Updated
2022-09-21
Healthy Volunteers
No
Conditions
Locations (3)
Medizinische Hochschule Hannover
Hanover, Lower Saxony, Germany
Hacettepe University, Medical Faculty
Ankara, Sihhiye, Turkey (Türkiye)
University of Edinburgh
Edinburgh, United Kingdom