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International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases
Sponsor: Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan
Summary
This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
120
Start Date
2014-01
Completion Date
2028-03-31
Last Updated
2026-02-05
Healthy Volunteers
No
Conditions
Locations (15)
Stanford University
Stanford, California, United States
Columbia University
New York, New York, United States
University of Graz
Graz, Styria, Austria
Peking University First Hospital
Beijing, Beijing Municipality, China
Pitié-Salpêtrière Hospital
Paris, Paris, France
Ludwig-Maximilians University
Munich, Bavaria, Germany
Sapienza University of Rome
Rome, Lazio, Italy
A.C.O. San Filippo Neri Hospital
Rome, Lazio, Italy
Catholic University
Milan, Lombardy, Italy
University of Padova
Padova, Veneto, Italy
Graduate School of Osaka University
Suita, Osaka, Japan
National Center of Neurology and Psychiatry
Kodaira, Tokyo, Japan
Maastricht University
Maastricht, Limburg, Netherlands
Harefield Hospital
Harefield, London, United Kingdom
New Castle University
Newcastle upon Tyne, Tyne and Wear, United Kingdom