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A National Registry on Chinese Patients With Lymphangioleiomyomatosis
Sponsor: Peking Union Medical College Hospital
Summary
Pulmonary lymphangioleiomyomatosis (LAM), a disease characterized by diffuse cystic changes in the lung, is a rare disorder that affects almost exclusively women. The main objectives of this study are to accurately evaluate the prevalence of LAM, the status of disease, the diagnosis and treatment, the quality of care, and the health related outcomes in China.
Official title: A National Registry on Clinical Manifestations, Genetics, Interventions, and Outcomes in Chinese Patients With Lymphangioleiomyomatosis (LAM-CHINA)
Key Details
Gender
FEMALE
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
1500
Start Date
2017-01-01
Completion Date
2026-10-01
Last Updated
2021-09-24
Healthy Volunteers
No
Conditions
Locations (1)
Peking Union Medical College Hospital
Beijing, Beijing Municipality, China