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RECRUITING
NCT03327779
World Bleeding Disorders Registry
Sponsor: World Federation of Hemophilia
View on ClinicalTrials.gov
Summary
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
20000
Start Date
2018-01-26
Completion Date
2028-01
Last Updated
2023-08-14
Healthy Volunteers
No
Locations (1)
World Federation of Hemophilia
Montreal, Quebec, Canada