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Natural History of Wilson Disease
Sponsor: Yale University
Summary
The purpose of the registry/repository is to provide a mechanism to store data and specimens to support the conduct of future research about Wilson disease (WD). The overall aim is to determine the optimal testing for diagnosis and parameters for monitoring treatment of WD that will aid product utilization and development.
Official title: Natural History of Wilson Disease: Registry for Patients With Wilson Disease
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
300
Start Date
2017-12-18
Completion Date
2029-11-15
Last Updated
2025-05-22
Healthy Volunteers
No
Conditions
Locations (6)
Yale University
New Haven, Connecticut, United States
Advent Health
Orlando, Florida, United States
Baylor College of Medicine
Houston, Texas, United States
Seattle Children's Hospital
Seattle, Washington, United States
Universitätsklinikum Heidelberg
Heidelberg, Germany
Royal Surrey Country Hospital
Guildford, Surrey, United Kingdom