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BRCA Founder OutReach (BFOR) Study
Sponsor: Memorial Sloan Kettering Cancer Center
Summary
The purpose of this study is to learn how to provide BRCA gene testing to a larger number of people as well as to make testing part of a person's regular medical care.
Key Details
Gender
All
Age Range
25 Years - Any
Study Type
OBSERVATIONAL
Enrollment
5412
Start Date
2017-11-10
Completion Date
2026-05-10
Last Updated
2026-03-06
Healthy Volunteers
Yes
Conditions
Interventions
BFOR Digital Health solution/Web Portal
A digital health solution with Internet-based participant recruitment and ascertainment is a mechanism for distributing access to genetic testing to populations who might not otherwise have access. For this project, LifeLink will build a private web-portal designed by the PI's of the study as described in this protocol, including the wireframes that are in the appendices, that will enable secure contact between study participants and the participating commercial laboratory (Quest Diagnostics) and BFOR researchers, as well as facilitate contacts between study participants and their primary care providers and/or a list of BFOR study centers and BFOR providers.
Locations (5)
University of California, Los Angeles
Los Angeles, California, United States
Dana Farber Cancer Institute
Boston, Massachusetts, United States
Beth Israel Deaconess Medical Center
Boston, Massachusetts, United States
Memorial Sloan - Kettering Cancer Center
New York, New York, United States
University of Pennsylvania
Philadelphia, Pennsylvania, United States