Clinical Research Directory

Inclusion Criteria: * PWH will be recruited through national hemophilia patient organizations utilizing their existing membership rosters, social media outlets and meetings / events. The investigators are not proposing a pre-determined method of PWH recruitment. They will utilize the information acquired in the workshop and take-home project to inform best practice in recruitment methodology for the study. The investigators may consider requesting different countries test different PWH recruitment strategies to test reproducibility. In the future, the questionnaire might also be administered to patients with other chronic conditions. Exclusion Criteria: * Disease severity and Age bands or age limits (e.g. ≥ Age 18) may be utilized to narrow the study population.