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Effect of Treatment Modality on Psychosocial Functioning of Survivors of Unilateral Retinoblastoma
Sponsor: Memorial Sloan Kettering Cancer Center
Summary
The purpose of this study is to find out about the quality of life and health in patients who had retinoblastoma in one eye (unilateral retinoblastoma), who either received treatment with chemotherapy injected directly into an artery leading to the eye (intra-arterial chemotherapy) or removal of the eye (enucleation). By quality of life, the investigators mean how the participants are feeling about being satisfied with things in their life, including, physical health, emotional health, and their ability to carry out daily activities. The investigators want to see if either treatment option would affect quality of life differently. The investigators hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.
Key Details
Gender
All
Age Range
8 Years - 17 Years
Study Type
OBSERVATIONAL
Enrollment
120
Start Date
2018-08-31
Completion Date
2026-08
Last Updated
2025-09-03
Healthy Volunteers
No
Conditions
Interventions
BASC-3 survey
A comprehensive questionnaire, incorporating the BASC-3 and PROMIS measures, will be administered to parents of participants ages 8-17. The BASC-3 and PROMIS scales each have a parent and child version; these scales will be used to measure the secondary objective of parent and patient concordance rates for all participants ages 8 and older.
PROMIS survey
A comprehensive questionnaire, incorporating the BASC-3 and PROMIS measures, will be administered to parents of participants ages 8-17. The BASC-3 and PROMIS scales each have a parent and child version; these scales will be used to measure the secondary objective of parent and patient concordance rates for all participants ages 8 and older.
Locations (2)
Memorial Sloan Kettering Cancer Center
New York, New York, United States
Texas Children's Hospital (Data Collection)
Houston, Texas, United States