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Study of Individuals Affected With Hypoplasminogenemia
Sponsor: Indiana Hemophilia &Thrombosis Center, Inc.
Summary
This is an Investigator initiated retrospective and prospective single cohort study. The study will utilize an international registry and develop a specimen biobank to provide an improved understanding of the natural history of hyposplasminogenemia, to elucidate the heterogeneity of phenotypic expression, identify markers to predict disease course, and inform improved therapeutic modalities
Official title: Hypoplasminogenemia: An International RetroSpecTive and PrOspective CohoRt StudY (HISTORY)
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
100
Start Date
2018-12-18
Completion Date
2027-04-19
Last Updated
2025-08-28
Healthy Volunteers
No
Conditions
Locations (30)
The University of Alabama (UAB)
Birmingham, Alabama, United States
Rush University Medical Center
Chicago, Illinois, United States
Indiana Hemophila @Thrombosis Center
Indianapolis, Indiana, United States
University of Minnesota, Pediatric Hem/Onc & Cancer Survivorship Program
Minneapolis, Minnesota, United States
Stony Brook University | Stony Brook Medicine
East Setauket, New York, United States
SUNY Upstate Medical University, Pediatric Hematology/Oncology
Syracuse, New York, United States
Wake Forest University
Winston-Salem, North Carolina, United States
Hemophilia Center of Western Pennsylvania
Pittsburgh, Pennsylvania, United States
Vanderbilt Children's Hematology-Oncology
Nashville, Tennessee, United States
Cook Children's Medical Center
Forth Worth, Texas, United States
The University of Texas Health Science Center at Houston
Houston, Texas, United States
Seattle Children's Hospital
Seattle, Washington, United States
Hospital Britanico Buenos Aires
Buenos Aires, Argentina
Murdoch Children's Research Institute, The Royal Children's Hospital
Melbourne, Victoria, Australia
Children's Health Queensland Hospital and Health Service
South Brisbane, Australia
Medical University of Innsbruck, University Clinic for Pediatrics and Adolescent Medicine
Innsbruck, Austria
Windsor Regional Hospital
Windsor, Ontario, Canada
CHU Sainte-Justine
Montreal, Quebec, Canada
CHU de Québec Université Laval
Québec, Quebec, Canada
University of Saskatchewan
Saskatoon, Canada
Alexandra Hospital, Athens, Hematology Department
Athens, Greece
Safra's Children Hospital, Sheba Medical Center
Tel Aviv, Israel
Angelo Bianchi Bonomi Hemophilia and Thrombosis Center,
Milan, Italy
University Hospital of Padova
Padua, Italy
Faculty of Medicine, Chiang Mai University
Chiang Mai, Thailand
Dokuz Eylul University pediatric Pulmonology, Allergy and Clinical Immunology
Izmir, Balçova, Turkey (Türkiye)
Istanbul Üniversitesi Onkoloji Enstitüsü
Istanbul, Turkey (Türkiye)
Istanbul University Cerrahpsasa, Cerrahpsasa Medical Faculty Pediatric Hematology and Oncology Department
Istanbul, Turkey (Türkiye)
Yuzuncu Yil University Faculty of Medicine Department of Ophthalmology
Van, Turkey (Türkiye)
Royal Free Hospital, Royal Free London NHS Foundation Trust
London, United Kingdom