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The FOrMe Registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry)
Sponsor: Prof. Dr. Paul Brinkkoetter
Summary
In a monocentric, later multicentric prospective approach the FOrMe registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry) aims to generate a longitudinal cohort of 150 pediatric cases of idiopathic nephrotic syndrome and 350 adult cases of biopsy-proven Minimal Change Disease (MCD) or Focal and Segmental Glomerular Sclerosis (FSGS) over 10 years. The registry will provide a repository for biomaterials such as blood samples, DNA, urine, feces, and tissue biopsies that will be accessible to collaborators to facilitate future research on pathogenesis, diagnostics, and treatment.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
500
Start Date
2018-04-01
Completion Date
2033-03-31
Last Updated
2025-09-17
Healthy Volunteers
No
Interventions
Biosampling
Biosampling at initial visit and follow-up visits
Locations (12)
University Hospital of Cologne
Cologne, North Rhine-Westphalia, Germany
Uniklinik RWTH Aachen
Aachen, Germany
Charité University Hospital
Berlin, Germany
Kindernierenzentrum Bonn
Bonn, Germany
Kindernephrologie Dachau
Dachau, Germany
University Hospital Erlangen
Erlangen, Germany
University Hospital Essen
Essen, Germany
University Hospital Heidelberg
Heidelberg, Germany
Klinikum St. Georg
Leipzig, Germany
University Hospital Marburg
Marburg, Germany
University Hospital Münster
Münster, Germany
Klinikum Stuttgart
Stuttgart, Germany