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Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases
Sponsor: Memorial Sloan Kettering Cancer Center
Summary
This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?
Official title: A Study to Identify the Supportive Care Needs of Caregivers of Patients With Erdheim-Chester Disease and Other Histiocytic Diseases
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
250
Start Date
2019-06-14
Completion Date
2026-06
Last Updated
2025-09-11
Healthy Volunteers
Yes
Conditions
Interventions
online surveys
Survey data about supportive care needs, mood, and the experience of IC's finding meaning and purpose in the caregiving experience.
Locations (1)
Memorial Sloan Kettering Cancer Center
New York, New York, United States