Clinical Research Directory
Browse clinical research sites, groups, and studies.
Pulmonary Hypertension Association Registry
Sponsor: Pulmonary Hypertension Association, Inc.
Summary
The PHA Registry (PHAR) is a national study about people who have pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). PHAR collects information from people with PAH and CTEPH who are cared for in participating PHA-accredited Pulmonary Hypertension Care Centers throughout the U.S. PHAR will determine how people with PAH and CTEPH are evaluated, tested, and treated, and will observe how well these participants do. The goal is to see if people with PH are treated according to recommended guidelines, and to see if there are certain factors that can lead to better or worse outcomes. PHAR will include information about people with PAH and CTEPH in the U.S. who are seen at participating PHA-accredited PH Care Centers. PHAR contains data about patient care and outcomes. Specifically, data in the PHAR includes information on diagnosis; clinical status; socioeconomic status; diagnosis test results; body size; treatment information; interest in participating in clinical trials; family health and social history; and information about smoking, alcohol, or drug use. Participants are followed over time, and provide updates such as changes in therapy, how often participants need to go to the hospital, and survival. Such information may help healthcare providers provide better care.
Key Details
Gender
All
Age Range
0 Years - Any
Study Type
OBSERVATIONAL
Enrollment
3000
Start Date
2015-10
Completion Date
2025-12
Last Updated
2025-11-14
Healthy Volunteers
No
Conditions
Locations (52)
Arizona Pulmonary Specialists, Ltd.
Phoenix, Arizona, United States
UC Davis Health
Sacramento, California, United States
UCSF Medical Center
San Francisco, California, United States
UCSF Benioff Children's Hospital
San Francisco, California, United States
Cottage Health System - Santa Barbara Pulmonary Associates
Santa Barbara, California, United States
Stanford University
Stanford, California, United States
Children's Hospital Colorado
Aurora, Colorado, United States
UC Health - Anschutz Medical Campus
Aurora, Colorado, United States
University of Connecticut Health
Farmington, Connecticut, United States
Mayo Clinic Florida
Jacksonville, Florida, United States
Northside Hospital
Atlanta, Georgia, United States
Indiana University Health
Indianapolis, Indiana, United States
University of Iowa Hospitals & Clinic
Iowa City, Iowa, United States
KU Medical Center
Kansas City, Kansas, United States
Kentuckiana Pulmonary Associates
Louisville, Kentucky, United States
Ochsner Medical Center
Jefferson, Louisiana, United States
LSU Healthcare Network Clinic
New Orleans, Louisiana, United States
University of MD Medical Group, PA
Baltimore, Maryland, United States
Johns Hopkins University
Baltimore, Maryland, United States
Henry Ford Hospital
Detroit, Michigan, United States
University of Minnesota Health
Minneapolis, Minnesota, United States
Mayo Clinic
Rochester, Minnesota, United States
Washington University in St. Louis
St Louis, Missouri, United States
Weill Cornell Medical Center
New York, New York, United States
Columbia University Medical Center/NewYork-Presbyterian Hospital
New York, New York, United States
University of Rochester Medical Center
Rochester, New York, United States
UNC Chapel Hill
Chapel Hill, North Carolina, United States
Duke University Medical Center
Durham, North Carolina, United States
Cincinnati Children's Hospital
Cincinnati, Ohio, United States
UC Health
Cincinnati, Ohio, United States
The Oregon Clinic
Portland, Oregon, United States
University of Pennsylvania
Philadelphia, Pennsylvania, United States
Allegheny General Hospital
Pittsburgh, Pennsylvania, United States
University of Pittsburgh Medical Center
Pittsburgh, Pennsylvania, United States
Rhode Island Hospital
Providence, Rhode Island, United States
AnMed Health
Anderson, South Carolina, United States
Ft. Sanders Regional Medical Center
Knoxville, Tennessee, United States
Vanderbilt Children's Hospital
Nashville, Tennessee, United States
Vanderbilt University Medical Center
Nashville, Tennessee, United States
UT Southwestern Medical Center
Dallas, Texas, United States
Texas Children's Hospital
Houston, Texas, United States
Baylor Scott & White
Plano, Texas, United States
University of Utah Health
Salt Lake City, Utah, United States
University of Virginia
Charlottesville, Virginia, United States
Inova Fairfax Hospital
Falls Church, Virginia, United States
Sentara Heart Hospital
Norfolk, Virginia, United States
VCU Medical Center
Richmond, Virginia, United States
Seattle Children's Hospital
Seattle, Washington, United States
University of Washington
Seattle, Washington, United States
University of Wisconsin Hospital and Clinics
Madison, Wisconsin, United States
Aurora St. Luke's Medical Center
Milwaukee, Wisconsin, United States
Froedtert & Medical College of Wisconsin
Milwaukee, Wisconsin, United States