Clinical Research Directory
Browse clinical research sites, groups, and studies.
Back to Studies
Summary
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
Official title: Alpha-1 Research Registry Protocol
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
4000
Start Date
2019-06-20
Completion Date
2029-06-20
Last Updated
2024-01-30
Healthy Volunteers
No
Conditions
Locations (1)
Alpha-1 Foundation
Coral Gables, Florida, United States