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European Paediatric Non-Alcoholic Fatty Liver Disease Registry (EU-PNAFLD)
Sponsor: Cambridge University Hospitals NHS Foundation Trust
Summary
The EU-PNAFLD (The European Paediatric NALFD Registry) will be a network composed of European centres involved in the care of children with NAFLD, and will include Hepatologists, Endocrinologists, and Scientists, supported by relevant international specialists. This collaboration will build on existing infrastructure (local databases and bio-repositories) and will align with the adult European NAFLD Registry ("EPoS", Elucidating Pathways of Steatohepatitis study) to allow long-term follow-up supported by translational studies. Through an international, well-characterised large-scale cohort, we hope to: facilitate multi-centre clinical trials; extend our understanding of the key disease mechanisms of NAFLD; and establish the natural history of paediatric NAFLD.
Official title: The European Paediatric Non-alcoholic Fatty Liver Disease Registry (EU-PNAFLD): a Prospective, Longitudinal Follow-up of Children With Non-alcoholic Fatty Liver Disease
Key Details
Gender
All
Age Range
Any - 18 Years
Study Type
OBSERVATIONAL
Enrollment
2000
Start Date
2017-11-14
Completion Date
2047-11
Last Updated
2022-03-04
Healthy Volunteers
No
Locations (3)
Maastricht UMC
Maastricht, Netherlands
Addenbrooke's Hospital
Cambridge, Cambridgeshire, United Kingdom
Birmingham Children's Hospital
Birmingham, United Kingdom