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A National Prospective Cohort of Patients With Idiopathic Nephrotic Syndrome Beginning in Childhood.
Sponsor: University Hospital, Limoges
Summary
Pediatric idiopathic nephrotic syndrome (INS) is a rare disease for which the optimal therapeutic strategy has not yet been defined. A network of clinicians treating complicated forms of this disease (grouped within the Société de Néphrologie Pédiatrique, SNP) exists, but to date there is no prospective cohort following up these patients that would facilitate the development of cohort-nested trials. This absence of structured follow up makes it difficult to set up prospective studies. The main objective is to create a prospective cohort of pediatric INS patients to collect cases treated in SNP centers, to study their epidemiological characteristics, and to provide a basis for comparison for future cohort-nested trials.
Key Details
Gender
All
Age Range
Any - 18 Years
Study Type
OBSERVATIONAL
Enrollment
1180
Start Date
2020-03-13
Completion Date
2048-01
Last Updated
2026-03-13
Healthy Volunteers
No
Conditions
Interventions
Inclusion and follow up of pediatric patients with an idiopathic nephrotic syndrome,
The study consists in collecting clinical, biological, psychological and social data of INS pediatric patients. A bio collection is also created: blood, urine, hair and nails will be collected at the beginning of the INS (before starting immunosuppressive treatment).
Locations (48)
CH d'Agen
Agen, France
CHU d'Amiens
Amiens, France
CHU d'Auxerre
Auxerre, France
CH de la côte basque
Bayonne, France
CHU de Besançon
Besançon, France
CHU de Boredeaux
Bordeaux, France
CHU de Brest
Brest, France
HCL Lyon
Bron, France
CH de Chambéry
Chambéry, France
CHU de Clermont Ferrand
Clermont-Ferrand, France
CHU de Dijon
Dijon, France
CH du Val d'Ariège
Foix, France
CH de la Rochelle
La Rochelle, France
CHU de Grenoble
La Tronche, France
CH de Versaille
Le Chesnay, France
CHU de Lille - Hôpital Jeanne de Flandre
Lille, France
Limoges Hospital
Limoges, France
CHU de Marseille - Timone enfants
Marseille, France
CH de Macon
Mâcon, France
CHU de Montpellier - Hôpital Arnaud de Villeneuve
Montpellier, France
CHU de Nancy
Nancy, France
CHU de Nantes
Nantes, France
CHU de Nice - Hopital Larchet
Nice, France
CHU de Nimes
Nîmes, France
AP-HP Trousseau
Paris, France
AP-HP Robert Debré
Paris, France
AP-HP Necker
Paris, France
CH de Pau
Pau, France
CH de Perpignan
Perpignan, France
CH de Périgueux
Périgueux, France
CHU de Poitiers
Poitiers, France
CH d'Annecy
Pringy, France
CHU de Reims
Reims, France
CHU de Rennes
Rennes, France
CH de Roanne
Roanne, France
CH de Roubaix
Roubaix, France
CHU de Rouen
Rouen, France
CHU de Saint-Etienne
Saint-Priest-en-Jarez, France
CH de Sallanches
Sallanches, France
CHRU de Strasbourg
Strasbourg, France
CH de Toulon
Toulon, France
CHU de Toulouse
Toulouse, France
CHU de Tours
Tours, France
CH de Vannes
Vannes, France
CH de Villefranche
Villefranche-sur-Saône, France
CH de Voiron
Voiron, France
CHU de La Réunion - Félix Guyon
Saint-Denis, Reunion
CHU de la Réunion
Saint-Pierre, Reunion