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COMPLETED
NCT04455698
NA

Engaging and Activating Cancer Survivors in Genetic Services Study

Sponsor: University of Chicago

View on ClinicalTrials.gov

Summary

To address the gap in access to genetic services, this study will evaluate the effectiveness of an adapted model of remote delivery of genetic services to increase the uptake of recommended genetic assessment and testing in childhood cancer survivors.

Key Details

Gender

All

Age Range

18 Years - Any

Study Type

INTERVENTIONAL

Enrollment

511

Start Date

2021-08-16

Completion Date

2025-12-31

Last Updated

2026-08-12

Healthy Volunteers

Yes

Conditions

Interventions

BEHAVIORAL

Remote Telegenetic Counseling by Phone

Participants will receive standard of care pre-test and disclosure genetic counseling with a genetic counselor by Telephone.

BEHAVIORAL

Remote Telegenetic Counseling by Videoconferencing

Participants will receive standard of care pre-test and disclosure genetic counseling with a genetic counselor using Videoconferencing Technology.

BEHAVIORAL

Usual Care Arm

Participants in the usual care arm will receive usual care services depending on which referral method they choose and if they initiate services. After a 6 month status survey, if they have not had genetic services through usual care they will be offered services and re-randomized to ARM A/ARM B.

Locations (3)

University of Chicago Medical Center

Chicago, Illinois, United States

University of Pennsylvania

Philadelphia, Pennsylvania, United States

St Jude Children's Research Hospital

Memphis, Tennessee, United States