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Utilizing Palliative Leaders In Facilities to Transform Care for Alzheimer's Disease
Sponsor: Indiana University
Summary
The purpose of this study is to evaluate a comprehensive model for integrating both primary and specialty Palliative Care for older adults with dementia into nursing facilities. Palliative Care is a supportive care approach that aims to improve the quality of life of patients and their families facing serious or life-threatening illnesses, through the prevention and relief of suffering through the treatment of pain and other problems, using physical, psychosocial and spiritual approaches. Palliative care is specialized medical care for people who are living with a serious illness. This type of care is focused on providing relief from the symptoms and from the stress of the illness. The goal is to improve quality of life for both patient and family. The UPLIFT-AD model will include providing education on primary Palliative Care for residents with dementia to nursing facility staff, training nursing facility staff in providing primary Palliative Care, and providing access to specialty Palliative Care consultations for residents. To help understand the impact of these interventions, this study will also collect information about resident health, the care they receive, and perceptions of their quality of life according to both family members and nursing facility staff.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
1322
Start Date
2021-09-08
Completion Date
2025-09-30
Last Updated
2026-07-29
Healthy Volunteers
No
Conditions
Interventions
UPLIFT-AD
Access to palliative care needs screening, advance care planning conversations, palliative care consultations
Locations (1)
American Senior Communities
Indianapolis, Indiana, United States