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RECRUITING
NCT04569162
Rhizomelic Chondrodysplasia Punctata Registry
Sponsor: Nemours Children's Clinic
View on ClinicalTrials.gov
Summary
The goal of this registry is to collect medical information on individuals with rhizomelic chondrodysplasia punctata and closely related conditions. The study team hopes to learn more about these conditions and improve the care of people with it by establishing this registry.
Official title: Rhizomelic Chondrodysplasia Punctata Registry at Nemours Children's Health
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
100
Start Date
2013-05-17
Completion Date
2030-01-01
Last Updated
2025-07-11
Healthy Volunteers
No
Locations (1)
Nemours
Wilmington, Delaware, United States