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Summary
NEPTUNE Match is an additional opportunity offered to NEPTUNE study participants to prospectively recruit and communicate patient-specific clinical trial matching with kidney patients and their physician investigators.
Official title: Implementing Precision Medicine for Glomerular Diseases in the Nephrotic Syndrome Study Network (NEPTUNE)
Key Details
Gender
All
Age Range
1 Year - 80 Years
Study Type
INTERVENTIONAL
Enrollment
375
Start Date
2022-05-02
Completion Date
2029-06-30
Last Updated
2026-02-17
Healthy Volunteers
No
Conditions
Interventions
Communication
The NEPTUNE Match study includes an interdisciplinary Communication Team that will translate findings from the Molecular Nephrology Board (MNB) to inform patients of the matching assessment with ongoing clinical trials. This team has considerable experience with conveying complex biomedical research information to patients and families and includes experts in precision nephrology, nephrology patient \[adult and pediatric\] communication, and health education.
Locations (16)
Emory University Hospital - Children's Hospital of Atlanta
Atlanta, Georgia, United States
John H. Stroger, Jr., Hospital of Cook County
Chicago, Illinois, United States
University of Kansas Medical Center
Kansas City, Kansas, United States
Johns Hopkins Medicine
Baltimore, Maryland, United States
University of Michigan
Ann Arbor, Michigan, United States
Children's Mercy Hospital
Kansas City, Missouri, United States
Northwell/Cohen's Children's Hospital
New Hyde Park, New York, United States
Columbia University Medical Center
New York, New York, United States
University of North Carolina Chapel Hill
Chapel Hill, North Carolina, United States
Cleveland Clinic Foundation
Cleveland, Ohio, United States
Hospital of the University of Pennsylvania
Philadelphia, Pennsylvania, United States
Temple University
Philadelphia, Pennsylvania, United States
Medical University of South Carolina
Charlotte, South Carolina, United States
Seattle Children's Hospital
Seattle, Washington, United States
University of Washington Medical Center
Seattle, Washington, United States
Providence Sacred Heart Medical Center
Spokane, Washington, United States