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Palliative Care in Maternity and Neonatology
Sponsor: University Hospital, Lille
Summary
Palliative care is now an accepted principle in most maternity and neonatology wards, however not much is known about its psychological and social consequences on families. Some children continue their life after a palliative care decision has been taken. In France, quality of life and the neuro-developmental evolution of newborns who continue their life after a palliative care decision has been taken, have never been studied.
Official title: How Parents (and Their Child if They Continue Their Life) Fare After a Decision of Palliative Care Has Been Taken in the Neonatal Period
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
1
Start Date
2020-02-12
Completion Date
2023-08-31
Last Updated
2026-05-22
Healthy Volunteers
No
Conditions
Interventions
Semi-structured interviews
Exploring the psychological and social impact on parents of a palliative care decision concerning their child in the neonatal period
Questionnaire
Assessing the neuro-developmental evolution of children and understanding the determinants of the psychological and social impact of palliative care decisions on parents
following Scales
Scales : Hospital Anxiety and Depression, Intolerance to Uncertainty, and Brief COPE.
Locations (4)
CH ARRAS
Arras, France
CH LENS
Lens, France
Hop Jeanne de Flandre Chu Lille
Lille, France
CH Valenciennes
Valenciennes, France