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Adult Pulmonary Langerhans Cell Histiocytosis: a National Registry-based Prospective Cohort Study
Sponsor: Assistance Publique - Hôpitaux de Paris
Summary
The long-term outcomes of adult patients with pulmonary Langerhans cell histiocytosis (PLCH), particularly survival, is largely unknown. This is the first prospective study in the field evaluating the long-term outcomes of PLCH patients. This french countrywide registry-based study included a large cohort of PLCH patients followed for a sufficiently long period to address risk factors of long-term outcomes of PLCH patients.
Official title: Enquête épidémiologique Sur la prévalence et le Pronostic de l'Histiocytose Langerhansienne Pulmonaire de l'Adulte en France
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
500
Start Date
2004-01-01
Completion Date
2035-12-31
Last Updated
2020-12-17
Healthy Volunteers
No
Interventions
Standard of care
Standard of car of pulmonary Langerhans cell histiocytosis (PLCH)
Locations (1)
French national reference centre for Histiocytoses
Paris, France