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REgiStry Of the NAtural History of recurreNt periCarditis in pEdiatric and Adult Patients
Sponsor: Kiniksa Pharmaceuticals International, plc
Summary
The registry will focus on furthering the understanding of the natural history of recurrent pericarditis (RP), as well as document RP-related clinical, health-related quality of life (HRQoL), and economic burden and will assist the medical community to refine or develop data-driven recommendations for clinical management of RP patients to optimize clinical outcomes. It also aims to generate data in support of the impact of rilonacept on clinical outcomes in a real-world population.
Official title: Registry of the Natural History of Recurrent Pericarditis in Pediatric and Adult Patients
Key Details
Gender
All
Age Range
7 Years - Any
Study Type
OBSERVATIONAL
Enrollment
500
Start Date
2021-03-16
Completion Date
2029-03
Last Updated
2026-02-17
Healthy Volunteers
No
Conditions
Locations (29)
Alaska Heart & Vascular Institute
Anchorage, Alaska, United States
Pima Heart and Vascular
Tucson, Arizona, United States
University of California San Diego Medical Center
La Jolla, California, United States
Cedars-Sinai Medical Center
Los Angeles, California, United States
Scripps Health
San Diego, California, United States
Northwestern University
Chicago, Illinois, United States
Midwest Cardiovascular Research Foundation
Davenport, Iowa, United States
Johns Hopkins University
Baltimore, Maryland, United States
Massachusetts General Hospital
Boston, Massachusetts, United States
Brigham and Women's Hospital
Boston, Massachusetts, United States
Detroit Medical Center
Detroit, Michigan, United States
Minneapolis Heart Institute Foundation
Minneapolis, Minnesota, United States
Mayo Clinic - PPDS
Rochester, Minnesota, United States
Barnes-Jewish Hospital/Washington University
St Louis, Missouri, United States
University of Nebraska
Omaha, Nebraska, United States
TKL Research Inc.
Fair Lawn, New Jersey, United States
NYU Langone Health
New York, New York, United States
Northwell Health - Lenox Hill Hospital
New York, New York, United States
The Linder Research Center at The Christ Hospital
Cincinnati, Ohio, United States
Cleveland Clinic
Cleveland, Ohio, United States
Legacy Medical Group, Cardiology
Portland, Oregon, United States
Carnegie Mellon University, Allegheny Health Network, Allegheny General Hospital
Pittsburgh, Pennsylvania, United States
University of Texas Southwestern Medical Center
Dallas, Texas, United States
Houston Methodist Hospital
Houston, Texas, United States
University of Utah
Salt Lake City, Utah, United States
University of Vermont Medical Center
Burlington, Vermont, United States
Virginia Commonwealth University
Richmond, Virginia, United States
Seattle Children's Hospital
Seattle, Washington, United States
Swedish Medical Center - Cherry Hill
Seattle, Washington, United States