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ACTIVE NOT RECRUITING
NCT04687358

REgiStry Of the NAtural History of recurreNt periCarditis in pEdiatric and Adult Patients

Sponsor: Kiniksa Pharmaceuticals International, plc

View on ClinicalTrials.gov

Summary

The registry will focus on furthering the understanding of the natural history of recurrent pericarditis (RP), as well as document RP-related clinical, health-related quality of life (HRQoL), and economic burden and will assist the medical community to refine or develop data-driven recommendations for clinical management of RP patients to optimize clinical outcomes. It also aims to generate data in support of the impact of rilonacept on clinical outcomes in a real-world population.

Official title: Registry of the Natural History of Recurrent Pericarditis in Pediatric and Adult Patients

Key Details

Gender

All

Age Range

7 Years - Any

Study Type

OBSERVATIONAL

Enrollment

500

Start Date

2021-03-16

Completion Date

2029-03

Last Updated

2026-02-17

Healthy Volunteers

No

Locations (29)

Alaska Heart & Vascular Institute

Anchorage, Alaska, United States

Pima Heart and Vascular

Tucson, Arizona, United States

University of California San Diego Medical Center

La Jolla, California, United States

Cedars-Sinai Medical Center

Los Angeles, California, United States

Scripps Health

San Diego, California, United States

Northwestern University

Chicago, Illinois, United States

Midwest Cardiovascular Research Foundation

Davenport, Iowa, United States

Johns Hopkins University

Baltimore, Maryland, United States

Massachusetts General Hospital

Boston, Massachusetts, United States

Brigham and Women's Hospital

Boston, Massachusetts, United States

Detroit Medical Center

Detroit, Michigan, United States

Minneapolis Heart Institute Foundation

Minneapolis, Minnesota, United States

Mayo Clinic - PPDS

Rochester, Minnesota, United States

Barnes-Jewish Hospital/Washington University

St Louis, Missouri, United States

University of Nebraska

Omaha, Nebraska, United States

TKL Research Inc.

Fair Lawn, New Jersey, United States

NYU Langone Health

New York, New York, United States

Northwell Health - Lenox Hill Hospital

New York, New York, United States

The Linder Research Center at The Christ Hospital

Cincinnati, Ohio, United States

Cleveland Clinic

Cleveland, Ohio, United States

Legacy Medical Group, Cardiology

Portland, Oregon, United States

Carnegie Mellon University, Allegheny Health Network, Allegheny General Hospital

Pittsburgh, Pennsylvania, United States

University of Texas Southwestern Medical Center

Dallas, Texas, United States

Houston Methodist Hospital

Houston, Texas, United States

University of Utah

Salt Lake City, Utah, United States

University of Vermont Medical Center

Burlington, Vermont, United States

Virginia Commonwealth University

Richmond, Virginia, United States

Seattle Children's Hospital

Seattle, Washington, United States

Swedish Medical Center - Cherry Hill

Seattle, Washington, United States