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Using Information Technology to Improve Outcomes for Children Living With Cancer
Sponsor: Northwestern University
Summary
This proposed study plans to develop and evaluate a patient-oriented, technology-based, symptom monitoring system that reports symptoms experienced by children with cancer to their parents and health care providers.
Key Details
Gender
All
Age Range
8 Years - 17 Years
Study Type
INTERVENTIONAL
Enrollment
216
Start Date
2021-04-01
Completion Date
2025-12-31
Last Updated
2025-05-29
Healthy Volunteers
No
Conditions
Interventions
Symptom Monitoring & Systematic Assessment and Reporting System in Young Survivors (SyMon-SAYS)
Participants will complete a 9-item SyMon-SAYS symptom assessment checklist every week during the intervention phase (Intervention Group: weeks 1-16; Waitlist Control: weeks 9-16) through Epic MyChart via mobile app, computer or tablet. Patients' symptom scores will be monitored and reported to their oncology care providers. When a patient symptom score trigger threshold is met, the system will generate an email alert through Epic (electronic medical record system) messaging to the provider. The provider will take appropriate actions using his/her clinical judgement, including contacting patients and families when needed. Symptom scores overtime will be available in MyChart (patient-facing component of the Epic electronic medical record system) for patients and parents to review and to discuss with the child's provider during clinical visits.
Locations (1)
Ann & Robert H. Lurie Childrens Hospital of Chicago
Chicago, Illinois, United States