International Registry of Patients With Alpha Thalassemia

RECRUITING

NCT04872179

Sponsor: University of California, San Francisco

Summary

This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.

Official title: International Prospective Registry of Patients With Alpha Thalassemia

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

500

Start Date

2017-01

Completion Date

2037-01

Last Updated

2025-04-04

Healthy Volunteers

No

Conditions

Alpha-Thalassemia Alpha Thalassemia Major Alpha Thalassemia Minor

Locations (1)

University of California San Francisco

San Francisco, California, United States

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