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The Rett Syndrome Global Registry
Sponsor: Rett Syndrome Research Trust
Summary
The Rett Global Registry is a fully remote, global, caregiver-reported registry to collect information about caring for a loved one with Rett syndrome. In addition, caregivers have the ability to track and graph their loved one's symptoms and care strategies over time, store information for central access, and opt-in to complete medical record consolidation and summary. Qualified researchers and therapeutic developers may request access to de-identified aggregate information to further Rett research, or assist with clinical development planning to facilitate and expedite more effective clinical trials.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
5000
Start Date
2022-01-31
Completion Date
2031-06-30
Last Updated
2026-02-17
Healthy Volunteers
No
Conditions
Locations (1)
Rett Syndrome Research Trust
Trumbull, Connecticut, United States