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European Disease Registry on Retinopathy of Prematurity (ROP)
Sponsor: University Medicine Greifswald
Summary
The EU-ROP registry is a European wide multicenter non-interventional observational registry study intended to run open-ended in as many countries as possible including infants treated for retinopathy of prematurity irrespective of the used treatment modality. The registry is strictly observational; only clinical routine data is collected, no study-specific examinations or interventions are to be performed. The aim of the EU-ROP registry is to collect information on as many patients as possible treated for ROP in Europe. Both the number of study centers as well as the number of patients to be included into the registry are not limited. The primary objective is to describe the typical clinical features of infants with severe ROP, variations in phenotype, and the clinical progression of the disease over time (natural history) in different European countries as well as to study treatment patterns, follow-up patterns, as well as long-term outcomes.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
3000
Start Date
2021-08-06
Completion Date
2039-08
Last Updated
2024-01-24
Healthy Volunteers
No
Conditions
Interventions
Registry of preterm born infants with treatment-requiring ROP
All prematurely born infants who develop treatment requiring ROP and are treated (independent of the kind of treatment modality) at a center that participates in the registry are eligible for database entry.
Locations (59)
University Eye Hospital Salzburg
Salzburg, Austria
University Hospital Saint George
Plovdiv, Bulgaria
Acibadem City Clinic Tokuda Hospital
Sofia, Bulgaria
University Eye Hospital Alexandrovska
Sofia, Bulgaria
University Eye Hospital Tartu
Tartu, Estonia
Hospital Rothschild
Paris, France
University Eye Hospital
Aachen, Germany
University Eye Hospital Helios
Berlin, Germany
University Eye Hospital Vivantes
Berlin, Germany
University Eye Hospital Bonn
Bonn, Germany
Braunschweig Muncipal Hospital
Braunschweig, Germany
University Eye Hospital
Chemnitz, Germany
University Eye Hospital
Cologne, Germany
Carl-Thiem University Hospital Cottbus
Cottbus, Germany
University Eye Hospital
Düsseldorf, Germany
University Eye Hospital
Freiburg im Breisgau, Germany
University Eye Hospital Fulda
Fulda, Germany
University Eye Hospital Gießen
Giessen, Germany
University Eye Hospital
Göttingen, Germany
University Eye Hospital
Greifswald, Germany
University Eye Hospital
Hamburg, Germany
University Eye Hospital Hannover
Hanover, Germany
Facharztpraxis für Augenheilkunde
Ludwigshafen, Germany
University Eye Hospital
Lübeck, Germany
Ludwig-Maximilins-University Munich
Munich, Germany
Augenzentrum am St. Franziskus-Hospital
Münster, Germany
University Eye Hospital
Münster, Germany
Nuremberg South Hospital
Nuremberg, Germany
Ernst-von-Bergmann Hospital
Potsdam, Germany
University Eye Hospital
Regensburg, Germany
University Eye Hospital
Tübingen, Germany
University Eye Hospital Ulm
Ulm, Germany
P&A Kyriakou Athens Children Hospital
Athens, Greece
Department of Ophthalmology University Hospital of Larissa
Larissa, Greece
Aristotle University of Thessaloniki
Thessaloniki, Greece
University Clinical Center of Kosovo
Pristina, Kosovo
Medical University of Bialystok Children's Clinical Hospital
Bialystok, Poland
University Hospital in Bydgoszcz
Bydgoszcz, Poland
University Hospital in Zabrze Silesia
Katowice, Poland
Prof. Dr. Stanislaw Popowski Regional Specialized Children's Hospital
Olsztyn, Poland
University of Medical Sciences Poznan
Poznan, Poland
Children's Memorial Health Institute Warsaw
Warsaw, Poland
Biomédica de Málaga y Plataforma en Nanomedicina
Málaga, Spain
University and Polytechnic Hospital La Fe
Valencia, Spain
University Eye Hospital Genève
Geneva, Switzerland
University Eye Hospital Cukurova
Adana, Turkey (Türkiye)
Etlik Zübeyde Hanim Women's Health Education and Research Hospital
Ankara, Turkey (Türkiye)
Hacettepe University Children's Hospital
Ankara, Turkey (Türkiye)
University Eye Hospital Ankara
Ankara, Turkey (Türkiye)
University Eye Hospital Baskent
Ankara, Turkey (Türkiye)
University Eye Hospital Gazi
Ankara, Turkey (Türkiye)
University Eye Hospital Uludag
Bursa, Turkey (Türkiye)
Umraniye Research and Education Hospital
Istanbul, Turkey (Türkiye)
University Eye Hospital Koc
Istanbul, Turkey (Türkiye)
Ordu University Medical Faculty
Ordu, Turkey (Türkiye)
Ondokuz Mayis University Eye Hospital
Samsun, Turkey (Türkiye)
Department of Pediatric Ophthalmology and Eye Microsurgery Perinatal Center Kiev
Kiev, Ukraine
Kyiv Pediatric Hospital Ohmatdyt
Kiev, Ukraine
Filatov Institute of Eye Diseases and Tissue Therapy Odessa
Odesa, Ukraine