Swiss Pediatric Inflammatory Brain Disease Registry (Swiss-Ped-IBrainD)

RECRUITING

NCT05017142

Sponsor: University of Bern

Summary

The Swiss-Ped-IBrainD is a national patient registry that collects information on diagnosis, symptoms, treatment, and follow-up of pediatric patients with an inflammatory brain disease in Switzerland. It was first implemented in 2020 in the pediatric clinic of the university hospital in Bern. Further centers all over Switzerland opened for recruitment after that: Aarau, Basel, Bellinzona, Chur, Geneva, Lausanne, Lucerne, St. Gallen, Winterthur and Zurich. The center in Fribourg is expected open for recruitment in 2025. The registry provides data for national and international monitoring and research. It supports research on inflammatory brain diseases in Switzerland and the exchange of knowledge between clinicians, researchers, and therapists. The registry aims to improve the treatment of children with inflammatory brain diseases and optimizing their health care and quality of life.

Official title: Swiss Pediatric Inflammatory Bain Disease Cohort Study

Key Details

Gender

All

Age Range

Any - 36 Years

Study Type

OBSERVATIONAL

Enrollment

500

Start Date

2020-04-14

Completion Date

2071-01-01

Last Updated

2024-12-16

Healthy Volunteers

No

Conditions

Optic Neuritis Transverse Myelitis Acute Disseminated Encephalomyelitis Multiple Sclerosis Neuromyelitis Optica Spectrum Disorder Anti-NMDAR Encephalitis Anti-GAD65 Associated Autoimmune Encephalitis Anti-AMPAR-1/2 Associated Autoimmune Encephalitis Anti-Lgi-1 Associated Autoimmune Encephalitis Anti-CASPR-2 Associated Autoimmune Encephalitis Anti-GABAR-1/2 Associated Autoimmune Encephalitis Onconeuronal Antibody (Hu, Ri, Yo, Amphiphysin, CRMP-5, Ma-1, Ma-2, SOX-1) Associated Autoimmune Encephalitis Hashimoto Encephalitis CNS Vasculitis CNS Sarcoidosis CNS Lupus Rasmussen Encephalitis Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD)

Locations (13)

Kantonsspital Aarau

Aarau, Canton of Aargau, Switzerland

Children's Hospital of Eastern Switzerland

Sankt Gallen, Canton of St. Gallen, Switzerland

University Children's Hospital Lausanne (CHUV)

Lausanne, Canton of Vaud, Switzerland

Kantonsspital Winterthur

Winterthur, Canton of Zurich, Switzerland

Pediatric Institute of Southern Switzerland, Ospedale San Giovanni

Bellinzona, Canton Ticino, Switzerland

Kantonsspital Graubünden

Chur, Kanton Graubünden, Switzerland

University Children's Hospital Basel, UKBB

Basel, Switzerland

University Children's Hospital, Inselspital Bern

Bern, Switzerland

Institute of Social and Preventive Medicine, University of Bern

Bern, Switzerland

Hôpital Fribourgeois - Freiburger Spital

Fribourg, Switzerland

University Hospitals of Geneva (HUG)

Geneva, Switzerland

Kinderspital Zentralschweiz

Lucerne, Switzerland

University Children's Hospital Zurich

Zurich, Switzerland

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