Clinical Research Directory
Browse clinical research sites, groups, and studies.
Overcoming Barriers to Accessing Genetic Medicine
Sponsor: Boston Children's Hospital
Summary
To learn about patient barriers to accessing genetic medicine, we will analyze anonymous posts from a membership-based online community \[Inspire.com\], and investigate how these barriers differ for various populations. We will then test whether these barriers can be addressed by providing online access to a genetic counselor to answer patient questions for one group of patients (virtual advisory board group) and compare to that of a control group who does not have access to a genetic counselor (virtual peer-to-peer board group).
Official title: Investigations of Barriers and Methods to Overcome Barriers to Access Genetic Medicine
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
70
Start Date
2023-04-15
Completion Date
2025-09-30
Last Updated
2024-07-03
Healthy Volunteers
No
Conditions
Interventions
Access to Genetic Counselor for answering questions
A genetic counselor answers questions posed by participants in the intervention arm on how to access genetic medicine. At the end of the study, the number of participants who were able to access genetic medicine will be assessed
Locations (1)
Boston Children's Hospital
Boston, Massachusetts, United States