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Telemedicine for Children With Sickle Cell Disease
Sponsor: Indiana University
Summary
The purpose of this study is to learn more about how the use of two different types of telemedicine (distance medical care) can address barriers to receiving comprehensive sickle cell care, and whether care can be improved. Aim 1: Adapt two telemedicine models (i.e., hub-and-spoke; direct-to-consumer) for use with children with SCD using caregiver input from our preliminary K12 work. Aim 2: Demonstrate the feasibility of the telemedicine models developed in Aim 1 as the models undergo successive stakeholder refinement during use in actual clinical care. Aim 3: Evaluate the effectiveness of the refined models from Aim 2 in a pre/post study by assessing (a) process of care measures, (b) provider satisfaction, (c) caregiver/patient-centered outcomes, and (d) clinical outcomes and healthcare utilization.
Official title: Telemedicine for Pediatric Sickle Cell Patients in Medically Underserved Areas
Key Details
Gender
All
Age Range
16 Years - Any
Study Type
INTERVENTIONAL
Enrollment
24
Start Date
2022-11-23
Completion Date
2026-04-30
Last Updated
2026-03-12
Healthy Volunteers
No
Conditions
Interventions
Types of Telemedicine Delivery Models
Each arm delivers standard sickle cell care using a different model based on patient location.
Locations (1)
Indiana University
Indianapolis, Indiana, United States