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Swiss Registry for Neuromuscular Disorders
Sponsor: University of Bern
Summary
The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity, the Swiss Patient Registry for DMD/BMD and SMA implemented several adaptations in 2018 to meet current and future expectations of patient's organizations, health authorities and research organizations.
Official title: Swiss Registry for Neuromuscular Disorders (Swiss-Reg-NMD)
Key Details
Gender
All
Age Range
0 Years - Any
Study Type
OBSERVATIONAL
Enrollment
2000
Start Date
2018-06-20
Completion Date
2071-01-01
Last Updated
2026-01-15
Healthy Volunteers
No
Locations (19)
Cantonal Hospital Aarau
Aarau, Canton of Aargau, Switzerland
Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
Bellinzona, Canton Ticino, Switzerland
Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano
Lugano, Canton Ticino, Switzerland
University Hospital Lausanne CHUV, Children's Hospital
Lausanne, Vaude, Switzerland
University Hospital Lausanne CHUV
Lausanne, Vaude, Switzerland
University Children's Hospital Basel
Basel, Switzerland
University Hospital Basel
Basel, Switzerland
Inselspital Bern, Children's Hospital
Bern, Switzerland
Inselspital Bern
Bern, Switzerland
Institute of Social and Preventive Medicine (ISPM), University of Bern
Bern, Switzerland
University Hospitals of Geneva, Children's Hospital
Geneva, Switzerland
University Hospitals of Geneva
Geneva, Switzerland
Cantonal Hospital of Lucerne LUKS
Lucerne, Switzerland
Cantonal Hospital of Lucerne, LUKS
Lucerne, Switzerland
Private Practice Alpenquai
Lucerne, Switzerland
Cantonal Hospital of Eastern Switzerland
Sankt Gallen, Switzerland
Children's Hospital of Eastern Switzerland
Sankt Gallen, Switzerland
University Hospital Zuerich, Children's Hospital
Zurich, Switzerland
University Hospital Zuerich
Zurich, Switzerland