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Czech AATD Registry
Sponsor: Thomayer University Hospital
Summary
Alpha-1-antitrypsin deficiency is the most common congenital disease of the respiratory system, leading to early pulmonary emphysema or bronchiectasis. Pulmonary involvement significantly accelerates active cigarette smoking. Patients with alpha-1-antitrypsin deficiency may also have liver cirrhosis, vasculitis, skin or intestinal disorders. The AATD Registry is a non-interventional multicenter retrospective prospective longitudinal follow-up of patients with alpha-1-antitrypsin deficiency. The aim of the AATD National Registry is to collect and analyze clinical data in patients with alpha-1 antitrypsin deficiency.
Official title: Czech Alpha-1 Antitrypsin Deficiency Registry, the National Observational Study.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
300
Start Date
2018-01-01
Completion Date
2035-12-31
Last Updated
2022-01-05
Healthy Volunteers
No
Conditions
Locations (1)
Thomayer university hospital
Prague, Czech Republic, Czechia