Clinical Research Directory
Browse clinical research sites, groups, and studies.
Swiss Rare Disease Registry (SRDR)
Sponsor: University of Bern
Summary
The SRDR is a national registry that records rare diseases in people of any age who live in Switzerland. It serves as a platform for scientists, health professionals, affected people, and politicians.The SRDR aims to collect epidemiological data on rare diseases, and data on changes to the diagnosis over time. The SRDR will further serve as a research platform and facilitate patient participation in national and international studies. The SRDR will promote harmonization of data and method between the numerous existing disease-specific registries in Switzerland, will strengthen the exchange with international rare disease registries for research and policy, and will build a network for communication for patients and health care providers.
Official title: Swiss Rare Disease Registry
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
500000
Start Date
2018-01-01
Completion Date
2071-01
Last Updated
2025-11-28
Healthy Volunteers
No
Conditions
Locations (20)
Kantonsspital Aarau, Pädiatrie
Aarau, Switzerland
Kantonsspital Aarau
Aarau, Switzerland
Center for Rare Diseases, Basel
Basel, Switzerland
Universitäs-Kinderspital beider Basel, UKBB
Basel, Switzerland
Universitätsspital Basel, USB
Basel, Switzerland
Centro Malattie Rare della Svizzera Italiana
Bellinzona, Switzerland
Center for Rare Diseases, Inselspital
Bern, Switzerland
University of Bern, Inselspital Bern
Bern, Switzerland
Center for Rare Diseases, Geneva
Geneva, Switzerland
Hôpitaux universitaires de Genève, HUG
Geneva, Switzerland
Center for Rare Diseases, Lausanne
Lausanne, Switzerland
Centre hospitalier universitaire vaudois, CHUV
Lausanne, Switzerland
Kantonsspital St. Gallen
Sankt Gallen, Switzerland
Ostschweizer Kinderspital
Sankt Gallen, Switzerland
Ostschweizer Zentrum für seltene Krankheiten, Pädiatrie
Sankt Gallen, Switzerland
Ostschweizer Zentrum für seltene Krankheiten
Sankt Gallen, Switzerland
Center for Rare Diseases, Zurich
Zurich, Switzerland
Universitäts-Kinderspital Zürich, Kispi
Zurich, Switzerland
Universitätsklinik Balgrist
Zurich, Switzerland
Universitätsspital Zürich, USZ
Zurich, Switzerland