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SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
Sponsor: Institut Curie
Summary
The SIOPEN BIOPORTAL is a prospective non-therapeutic multi-centre international study aimed at developing an international Registry linked to a Virtual Biobank for all the patients with peripheral neuroblastic tumor within countries of the SIOPEN network. The overall aim of this study is to provide a GDPR-compliant framework to collect basic clinical annotations, biological and genetic features and information about the location on biospecimens for all the patients with a peripheral neuroblastic tumor including neuroblastoma, ganglioneuroblastoma and ganglioneuroma in the SIOPEN network. This study will support data and sample management and intensify cross-borders data and sample sharing fostering translational and clinical research. The post-hoc hypothesis formulated based on the data generated in this study will be used as statistical basis for future precision medicine programs based on improved biological characterization, patient stratification and therapeutic management.
Key Details
Gender
All
Age Range
Any - Any
Study Type
INTERVENTIONAL
Enrollment
600
Start Date
2023-11-02
Completion Date
2038-11-02
Last Updated
2025-07-22
Healthy Volunteers
No
Interventions
No Intervention NA
Additional blood sampling (not mandatory)
Locations (38)
Fakultni nemocnice v Motole
Prague, Czechia
CHU Amiens
Amiens, France
Chu Angers
Angers, France
Hôpital Jean Minjoz
Besançon, France
Hôpital des enfants
Bordeaux, France
Chru Brest
Brest, France
CHU CAEN - Fédération de cancérologie - niveau 21
Caen, France
CHU D'Estaing de CLERMONT FERRAND
Clermont-Ferrand, France
DIJON Hôpital d'enfants
Dijon, France
Chu Grenoble
Grenoble, France
Centre Oscar Lambret
Lille, France
Centre Léon Bérard
Lyon, France
Hôpital d'Enfants de la Timone
Marseille, France
Hôpital Arnaud de Villeneuve
Montpellier, France
Chr Nantes
Nantes, France
CHU NICE
Nice, France
Institut Curie
Paris, France
Hôpital Armand Trousseau
Paris, France
Hôpital Jean Bernard
Poitiers, France
Chu Reims
Reims, France
Chu Hopital Sud
Rennes, France
Hôpital Charles NICOLLE
Rouen, France
Hôpital Nord
Saint-Etienne, France
Hôpital Hautepierre-CHU Strasbourg
Strasbourg, France
Hôpital des Enfants
Toulouse, France
Hôpital Clocheville
Tours, France
CHU NANCY- Hôpital d'Enfants
Vandœuvre-lès-Nancy, France
Institut Gustave Roussy
Villejuif, France
Oslo Universitetssykehus
Oslo, Norway
Kantonsspital Aarau AG
Aarau, Switzerland
Universitäts-Kinderspital beider Basel UKBB
Basel, Switzerland
Ospedale San Giovanni
Bellinzona, Switzerland
Inselspital Bern
Bern, Switzerland
HUG Hôpitaux Universitaires Genève
Geneva, Switzerland
CHUV, Centre hospitalier universitaire vaudois
Lausanne, Switzerland
Kinderspital Zentralschweiz, Luzern
Lucerne, Switzerland
Ostschweizer Kinderspital
Sankt Gallen, Switzerland
Universitäts-Kinderspital Zürich
Zurich, Switzerland