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PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
Sponsor: University of Giessen
Summary
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.
Official title: PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
40000
Start Date
2020-01-30
Completion Date
2055-01-30
Last Updated
2025-04-04
Healthy Volunteers
Yes
Conditions
Locations (1)
University Giessen PH Center
Giessen, Hesse, Germany