Clinical Research Directory
Browse clinical research sites, groups, and studies.
Pulmonary Fibrosis Foundation Community Registry
Sponsor: Pulmonary Fibrosis Foundation
Summary
Pulmonary fibrosis (PF) results from a diverse group of health conditions and affects the lives of patients (including those who are post lung transplant), caregivers and family members. The Pulmonary Fibrosis Foundation Community Registry will offer an online portal where participants can self-enroll and directly contribute information about their experience with PF to be compiled into a longitudinal data set for use by researchers.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
10000
Start Date
2022-07-11
Completion Date
2027-07-01
Last Updated
2025-04-11
Healthy Volunteers
Yes
Locations (1)
Pulmonary Fibrosis Foundation
Chicago, Illinois, United States